debra of America – 15th Annual Benefit at MoMA

Written by: Staff on 17th October 2013

debra of America - 15th Annual Benefit at MoMA |

2013 Brochure Email.pdf : Click Here

debra of America MoMA Benefit – Email Invite.pdf: Click Here

debra of America is holding our annual benefit at The Museum of Modern Art next Thursday, October 24 from 7:30PM to 10:30PM. This year is the 15^th anniversary, and we are honoring Sonya and Mats Wilander for their fifteen years of helping us raise money and spread awareness after their son Erik was born with Epidermolysis Bullosa.

In addition to honoring Sonya and Mats Wilander, we are presenting Partners in Progress awards to pharmaceutical companies for their recent work in developing therapies for those with EB and we will also be flying eight families who have courageously adopted EB children to New York City to attend the benefit.

All proceeds from this annual event benefit the ‘Butterfly Children’ who suffer from the rare and painful genetic disorder, Epidermolysis Bullosa (EB) – The Worst Disease You’ve Never Heard Of.™ debra of America is the only national nonprofit dedicated to funding research for treatments and a cure, while providing supportive services and programs for those with EB. Event details can be found here: www.debra.org/benefits

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THE 15TH ANNUAL DEBRA OF AMERICA BENEFIT
MoMA | The Museum of Modern Art
Honoring Sonya and Mats Wilander
October 24, 2013 | 7:30PM

The 15th Annual debra of America Benefit will take place on Thursday, October 24, 2013 from 7:30PM to 10:30PM at MoMA | The Museum of Modern Art in New York City.

You are cordially invited to attend a celebratory kickoff at New York City’s The Museum of Modern Art for National Epidermolysis Bullosa Awareness Week.

Honoring Sonya and Mats Wilander for 15-years of helping debra of America raise money and spread awareness
Presenting Partners in Progress Awards to pharmaceutical companies for their recent work in developing therapies for those with EB
Recognizing the courage of families that adopt EB children

Join us for an exciting evening at the most influential modern art museum in the world. All proceeds benefit debra of America and its mission to eradicate the inherent daily suffering of living with Epidermolysis Bullosa (EB) – The Worst Disease You’ve Never Heard Of.™

Topics: debra of America, Mats Wilander, MoMA, National Epidermolysis Bullosa Awareness Week, Sonya Wilander, tennis charity

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10sBalls_com says:

October 15, 2013 at 11:31 pm

debra of America – 15th Annual Benefit at MoMA – http://t.co/vXivYAgTHr #tennis @DebRAofAmerica
DebRAofAmerica says:

October 16, 2013 at 7:04 am

RT @10sBalls_com: debra of America – 15th Annual Benefit at MoMA – http://t.co/vXivYAgTHr #tennis @DebRAofAmerica